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Category Archives: Historical Record

Historical Record, Vol. 8

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This installment of the hemophilia “archive e-newsletter” is dedicated to the memory of Loras Goedken and the Goedken family. I’ve also included an attachment containing a scanned image of the COTT memorial brochure. Contained in the “archive” is a video tape of a program entitled “Ed Bradley Street Stories”, which aired on CBS in 1992. In the program, CBS reporter Richard Roth interviews Loras Goedken, from which the following exchanges are excerpted:

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Historical Record, Vol. 7

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This installment of the “archive e-newsletter” includes an attachment containing two articles regarding the research behind and introduction of factor concentrates. The first article, “Hemophiliac Doctor Helps Find Way to Save Bleeders” is dated May 14th, 1966 and references Dr. Edward Shanbrom, a researcher with Hyland labs, and his collaboration with biochemist and hemophiliac, Murray Thelin, of the University of North Carolina at Chapel Hill.

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Historical Record, Vol. 6

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I hope you are enjoying the “archive e-news letter” mailings. This installment includes two attachments containing scans of a serial cartoon strip which features hemophilia in its story line. Contained in the hemophilia “archive” are 77 panels from a cartoon strip entitled “Mark Trail”, page 1 and page 2, written by Ed Dodd and introduced in newspapers in April of 1946. The story featured in the attached scanned images, which ran from October, 1970 through January of 1971, centers around “Tommy Vine”, who is described in the strip as a “victim of hemophilia”.

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Historical Record, Vol. 5

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This installment of the “archive e-newsletter”  focuses on a very painful, controversial, and divisive era in hemophilia history. The attached scanned image is of a publication, dated February 1992, named “Action Now”, published by Michael Rosenberg and the American H/HIV Peer Association. I’ve also included excerpts from several books, also in the “archive” which provide additional context on the era, as well as Rosenberg himself.

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Historical Record, Vol. 4

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The attachment for this installment from the “archive” includes a scan of two brochures. One is “Facts About Hemophilia”, an NHF publication that provides information about Hemophilia and its treatment. The brochure is not dated, but I believe it to be from the late 1960s. The other pamphlet provides information on applying for state medical assistance in Pennsylvania, and is dated July, 1969.

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Historical Record, Vol. 3

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Today is the 20th anniversary of the death of Ryan White. Vol. 3 of the “archive e-newsletter” is a tribute to Ryan’s remarkable life. The attached scanned image from the “archive” is of the cover of ‘People’ magazine which featured an article on “The Last Days of Ryan White”. I’ve also included some personal thoughts,some additional biographical text, and a few links to videos of his life on YouTube.

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Historical Record, Vol. 2

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Here is the 2nd installment of the “Hemophilia archive e-newsletter”. The attachment contains a scanned image from the “archive.” Although the photo did not scan well, the text should be legible. In addition to the attachment, I’m including a few relevant comments on the subject, followed by a few notes on the intent and future plans for the “archive” mailings.

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