2010-09-07 | Welcome
Published on 06-15-2010
Advisory Committee Votes to Retain Current Blood Donor Bans

The federal Department of Health and Human Services' Advisory Committee On Blood Safety and Availability (ACBSA) voted 9 to 6 on June 11th to make no change in the current deferral policy banning men who have sex with another man, even once, since 1977 from ever donating blood.   The Committee in addition proposed a research agenda of studies to be undertaken, both to shed further light on reviews of the several deferral bans, and to undergird these and other efforts to increase the safety of the blood supply. more...

Published on 06-09-2010
Joint Statement on Addressing the MSM Blood Ban by Groups Representing People Living with Hemophilia, Gay Men and People Living with HIV/AIDS

The Department of Health & Human Services, Advisory Committee On Blood Safety and Availability will consider June 11 revision of the current Food and Drug Administration (FDA) policy recommending that men who have sex with another man (MSM) even one time since 1977 should be deferred indefinitely from donating blood.

In the following joint letter advocacy organizations representing both the Gay & Lesbian Communities and the Plasma User Communities have signed on to demonstrate their past and ongoing ability to work together on issues surrounding the safety of our nation’s blood and the most efficient and effective way to ensure the overall safety of this precious national resource, blood: more...

Published on 06-19-2008
Another Unnecessary Passing -- Jonathan Wadleigh

     On Thursday June 4th one of the Committee of Ten Thousand’s founders, Jonathan Wadleigh, passed into the spirit world. Jonathan was the last living member of the original New England support group that in 1989 became the Committee of Ten Thousand. Jonathan’s leadership ensured that the Committee of Ten Thousand would become a force in the AIDS and hemophilia communities.

     Without the effort, charisma, and energy of Jonathan Wadleigh the struggle in hemophilia would not have been so successful. Jonathan was instrumental in both Ricky Ray and the class action lawsuit that was originally filed by members of COTT. He was a strategic thinker, and one who provided serious leadership in the struggle for economic and social justice for the HIV/AIDS, HCV infected hemophilia community.

more...

Published on 01-21-2010
2010 Rachel Warner Scholarship Program Information Form & Application

COTT's Rachel Warner Memorial Scholarships are for educational use, from high school through graduate school.  They are for individuals with any bleeding disorder.  Awards are modest, seldom exceeding a thousand dollars. The May 1 deadline each year ensures time for awards and for planning additional resources for the year.

The Committee of Ten Thousand is proud to honor Rachel Warner through this Memorial Scholarship Fund.  The fund awards scholarships to individuals who are committed to pursuing higher education in order to better themselves, thereby enhancing our community.  The is a component of what Rachel believed in, stood for, and tirelessly advocated for: individual and community empowerment. more...

Published on 08-18-2006
Did I Miss Something?
Hepatitis C & Co-Infection

As the 16th World AIDS conference winds down, I am still attempting to locate the importance of hepatitis C, HCV in the conference proceedings. Given the staggering levels of HCV co-infection in the world’s HIV positive human beings, it is hard to accept so little attention from the organizers of AIDS 2006. One session was devoted to co-infection and, to our surprise; it was not a focus of the activist community at large. Certainly COTT and others organizations were focused on HCV and its impact in the global AIDS community. However the coverage of this important issue was far to light and needs to be raised to a much higher level of global awareness. more...

Published on 08-14-2006
COTT Reports from the World AIDS Conference
A Time To Deliver??

As the COTT team arrived in Toronto for the 16th World AIDS Conference, Corey Dubin penned the following retrospective on the Conference theme, A Time to Deliver. more...

Published on 03-15-2006
COTT Letter to Chairman Enzi Opposing S. 1955

Committee of Ten Thousand

Advocates for Persons with HIV/AIDS

236 Massachusetts Ave., NE Suite 609 · Washington, DC 20002(800) 488-COTT · (202) 543-0988 · www.cott1.org · cott-dc@earthlink.net

Tuesday, March 14, 2006

The Honorable Michael Enzi, Chair

Health, Education, Labor & Pension Committee

United States Senate

Washington D.C. 20510

The Committee of Ten Thousand would like to express its deep opposition to S. 1955, The Health Insurance Marketplace Modernization Act, on behalf of the HIV and HCV infected hemophilia community. We join the many other groups and individuals who seriously doubt that this bill will accomplish it’s intended goal of offering insurance at a better cost while covering more in need. Our constituency, having lived through the complete failure of the regulation of blood/blood products now has serious concerns that this legislation will cause a loss of benefits critical to our community. The loss of State mandated insurance benefits would force many individuals and families onto government entitlement programs. more...

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Washington Update is a bi-monthly primer on government related issues of importance to COTT's constituency. From health care legislation, to regulatory affairs to Administration policy for chronic diseases. A hands-on journal for grass roots health care advocacy in our Nation's capital.

COTT News A range of information, reportage and viewpoints regarding issues and events of importance to grass roots health care advocacy and support. In COTTÂ’s vision information is power and part of the empowered community equation. From Washington D.C. to State capitals to the HIH and the FDA, look to COTT for grass roots health care news.

COTT Canary tracks safety issues in our Nation's blood supply. It provides regular reporting, information and viewpoints from the grass roots end user communities. It is based on the historical practice of taking Canaries into the coalmines to gauge problems with breathable air. If the Canary passed out then it was time to evacuate the mine. Persons with hemophilia and other bleeding disorders are the canaries in the coalmine, the blood supply. If problems are present they will surface first in the hemophilia community.

Treatment Updates: News, information and analysis about living with HIV/AIDS, hepatitis C, and hemophilia and related problems associated with living with multiple life threatening diseases.