COTT contributors, staff and inspirational leaders
BOARD OF DIRECTORS
Corey Dubin, President
Executive Committee Member
Corey Dubin came to the COTT Board in late 1992. He was, at that time chair of the Santa Barbara County HIV/AIDS Ryan White Title II Consortia. He served in that role for 5 years and was also appointed to the State of California State-wide Title II Working group. In 1993 he was also appointed to the California Community Planning Working Group. The CPWG was tasked to draft California's HIV/AIDS Prevention Plan for the 1990's. He served on that Group until 1999 and served as one of the Co-Chairs of the Working Group for one year. Previous to the HIV/AIDS Hemophilia epidemic he was a successful radio and print journalist covering Latin America and US foreign Policy. He also served in the mid 1980's as News & Public Affairs Director for KPFK, Pacifica Radio in Los Angeles. He is a person with severe hemophilia who has three daughters and six grandchildren. Dubin is a 22 years survivor of HIV and HCV. He an Faviana currently reside in Goleta California.
Mary Lou Murphy, Co-Vice President
Executive Committee Member
Mary Lou is the longest serving COTT Board member. She has served as Co-VP for the last 6 years and is an integral part of the COTT family and history. Her son Matt was an early founding member; her other son Leo, was the co-founder of COTTWEST. Mary Lou also manages the Murphy Fund, COTT's emergency community support fund. She lives in Massachusetts and is active in the New England area. She is also one of the co-leaders of the move to establish a physical memorial for the Hemophilia AIDS/blood epidemic in the State of Massachusetts.
Terry MacNeill, Co-Vice President
Executive Committee Member
Terry MacNeill came to the Board of Directors in 1998 at our retreat in Sedona Arizona. Ever since, she has been an active and important player in the direction and actions of COTT. She has run a pediatric HIV/AIDS Foundation for years and is active in New England. Terry is the one of the co-leaders working to establish a memorial to the thousands who were sacrificed in the AIDS/blood epidemic in Hemophilia.
Terry lost her son Shawn to AIDS in 1996 and her son Brian (41 years old) is a long term survivor of HIV/AIDS and Hepatitis C.
Larry Allen, Executive Secretary
Executive Committee Member
Larry Allen came to the COTT Board in 1999, at which time he was a member of the U.S. Health & Human Services Department's Advisory Committee On Blood Safety & Availability. Larry was appointed to bring the Sickle Cell community to the regulatory table. COTT soon became aware of the lack of blood safety education or grass roots information in the Sickle Cell community. Larry Allen was then asked to join the COTT Board of Directors, and has remained an active member since then. Larry has two children afflicted by Sickle Cell. He continues to be a vibrant member of the COTT landscape.
Ray participated in clinical trials for cryoprecipitate and factor VIII concentrates as a young child. His involvement in these trials taught him the importance of helping his community, and drove him to be an advocate as an adult. Ray has now been in advocate for over 20 years. He was on the Board of Directors for the Texas Central Hemophilia Association from 93’ to 99’. He co-founded the Texas B-HIV (Blood-HIV), served as an advocate in Washington DC and was involved in the effort pass the Ricky Ray Act. Ray was also one of the original coordinators for the Men’s Advocacy Network of the National Hemophilia Foundation (MANN) from 93’ to 04’. In 2000 Ray joined the Hemophilia Federation of America. Ray started with COTT around 2006, in 2010 Corey Dubin asked him to be on COTT's Board of Directors.
Carl started his involvement with the bleeding disorder community at the age of 4 when he met with the Governor of Kentucky to discuss a “hemophilia program” for the state. He is a Past President of HFA and the Kentucky Hemophilia Foundation. He served as Chair of the KY Hemophilia Advisory committee and on numerous advisory boards for governmental agencies and manufacturers. He has been a public speaking advocate here and abroad. He is currently a member of the board of directors for the Committee Of Ten Thousand. Carl is very passionate about his: community, family and God. If you’ve ever met him, you know he says… “I woke up this morning and was NOT in hell or the hospital, it’s a Good Day!”
Checole came to the COTT Board in 1997. She had worked for the organization previously to joining the Board. She was seriously involved in the initiatives of COTT in the second half of the 1990s. From Ricky Ray to the Blood Safety & Availability Committee and its workings, Checole worked hard to further the community’s agenda. She is the proud Mother of two children and Corey Dubin is her father. She brings to the table her experiences growing up within a hemophilia family as well as the experience of the 1990s: grass roots health care organizing in a chronic disease community devastated by HIV/AIDS.
Dick Valdez was a founding member of the California based Hemophilia HIV/Peer Association. Dick, along with Michael Rosenberg, Peer’s president, had a great deal of community impact in through early to mid 1990s. At that time it was decided that Dick’s joining the COTT Board of Directors would facilitate better communication and joint actions between the two community based organizations. Upon Michael’s passing into the spirit world, Peer’s resources were folded into COTT through the work of Dick Valdez. Dick sacrificed two sons to this preventable nightmare and has worked tirelessly to honor his son’s and ensure that this does not occur again. Dick also served as Treasurer during the mid 1990s.
Dr. Rich Colvin
Dr. Richard Colvin has been a COTT board member for 11 years. He is 39 years old and has severe Hemophilia and has been living with HIV and HCV for at least 25 years. Dr. Colvin is an Infectious Disease Physician and Immunologist in Boston, MA. He is married and spends his free time bringing his 3 young children to daycare, school, and hockey practices. In the mid 1990s Rich was appointed by FDA Commissioner David Kessler to the Special Advisory Committee on CJD. In 2009 he was appointed to the FDA’s Blood Products Advisory Committee for a three-year term. He has chaired COTT’s Medical Advisory Committee and writes on treatment issues.
Ed Maslak with his wife Pam have been a member of the COTT family since 1993. They are survivors having lost their only child in 1988 to AIDS/HCV. Ed has served on many committees and was active in COTT’s effort to secure passage of the Ricky Ray Relief Act. He has also served as treasurer of COTT. He remains active, advocating for a safer blood supply and fair practice in pricing, distribution and choice in the supply of factor. He is also the voice for Factor IX in COTT, as his son had severe Factor IX deficiency.
Michael Allen, Operations Director
Michael is a 27-year-old man with Sickle Cell disease, in a family with three children over two generations with Sickle Cell disease. He Is a Government Major and cut his grassroots teeth in Cleveland Ohio. Climbing the ladder by volunteering for the local Democratic Party, first handing out fliers and registering voters, then working his way up to eventually being asked to be assistant to the Campaign Manager for an Independent candidate, Terri Hamilton brown. Brown was running for the first County Executive seat of Cuyahoga County after the Federal corruption scandal forced a reorganization of the County. The candidate came in second place. He is representative of another recipient community dependent on this nation’s blood supply to maintain a relative modicum of health and wellness as well as quality of life. He can be reached at our D.C. office by email Cott.email@example.com or at 1-(800) 488-2688 (488-COTT) or (202)-543-0988.
The Board Spiritual was implemented in the mid 1990s. It was done to honor and celebrate the lives of the many COTT Directors who have passed into the spirit world as a result of the AIDS/blood epidemic. What the men and women of COTT call, the hemophilia holocaust. No disrespect meant to holocausts of the past, however, for us at COTT, the preventable deaths of three generations of persons with hemophilia in a decade, over 50 percent of the entire American hemophilia community, can only be termed a holocaust. The community has been physically, emotionally and economically devastated by this preventable nightmare that is the result of corporate avarice and indifference, government inaction and in general, silence from the medical community. The Board Spiritual is part of our commitment to never forgot our lost loved ones and to always celebrate their lives and our own, always remembering for COTT, Action=Life. More...
Dave Cavenaugh, Government Relations
Based in COTT headquarters on Capitol Hill in Washington DC, Dave Cavenaugh came to COTT in 1998 and, bringing his years of Capitol Hill experience to bear, was an important part of the Ricky Ray Hemophilia Relief Fund Act becoming law. Dave has years of experience in community health centers, Ryan White and other AIDS legislation and programs, and federal healthcare programs and initiatives. He formerly coordinated COTT’s legislative and regulatory initiatives, projects and programs while co-producing our bi-weekly Washington Update. Dave retired from COTT in 2012.
John Rider, National Community Advocate
Based in the area where COTT was founded and has its historical roots, greater Boston, John came to COTT in 1995 with the daunting task of having to attempt to fill the shoes previously occupied by founding member Tom Fahey. Fahey, a social worker by trade, set the standard for community based peer advocacy and support work. John did an excellent job of meeting the Fahey standard. John placed his stamp on the program, bringing to bear years of work in the Quaker community as well as the peace movement and other struggles for change, human rights and social justice. John is known throughout the entire hemophilia community and has been a solid advocate for many individuals and families. John retired from COTT in 2010.